Health related quality of life in juvenile SLE patients– use of the PedsQL 3.0 rheumatology module
نویسندگان
چکیده
Methods The PedsQL 3.0 Rheumatology Module to adolescents (ages 13-18) (Portuguese translation), including teen self report and parent proxy report, and its instructions was sent by mail to the six jSLE patients of our Pediatric Department. Adolescents and their parents should fill the forms separately and return by mail. The queries were unidentified so the answers were anonymous. Data were analysed in EXCELL.
منابع مشابه
Assessment of Health Related Quality of Life (HRQL) in Egyptian Children with Rheumatic Diseases; Its Relation to Disease Activity and Functional Disability
Background Many pediatric rheumatic diseases persist into adulthood, with negative squeal from the disease or its treatment. We aimed to assess health related quality of life in a group of children with rheumatic diseases and its relation to disease activity and functional disability. Materials and Methods Fifty one patients were divided into three groups: Group 1 includes 27 patients diagnose...
متن کاملTurkish version of the pediatric quality of life inventory (PedsQL) 3.0 arthritis module: a reliability and validity study
Background and aim Most research on health-related quality of life (HRQoL) to date has focused on adults. However, the need to address QoL issues in chronically ill children has become a priority. The measuring of HRQoL, especially for these chronically ill children, is of importance not only for describing their actual situation and their health care needs, but also for evaluating clinical int...
متن کاملLevel of Agreement between Children with Asthma and their Parents on Quality of Life
Background: Child-parent agreement is a controversial aspect of measuring health-related quality of life (HRQoL) in children and adolescents. The aim of this study was to assess the agreement between the child self-reports and parent proxy reports of the PedsQL 3.0 Asthma Module in Iranian children with asthma to evaluate HRQoL. Moreover, the psychometric properties of the child and parent repo...
متن کاملQuality of life in patients with juvenile arthritis: adalimumab might make a difference
Material and methods There were examined 66 children (median age 10 (3; 16) years). From them there were 44 girls, 23 boys, 23 persons with oligoarticular juvenile idiopathic arthritis (JIA), 30-with polyarticular JIA, 3-with systemic JIA and 10 – with Juvenile Enthesitis related arthritis. 58 (88%) children were treated with adalimumab for more than a year in the dose of 40 mg every 2 weeks Ev...
متن کاملQuality of Life in Children and Adolescents with Congenital Heart Diseases in Zahedan, Iran
BackgroundLife expectancy has increased in congenital heart diseases (CHD) patients and the interest has risen considering the quality of life (QOL). The study aimed to compare patients and proxy-parents reports on CHD children' QOL.Materials and MethodsThis cross-sectional study performed on 165 CHD patients aged 2-18 years during 2016 using Pediatric Quality of Life 3.0 (PedsQL™ 3.0) inventor...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
عنوان ژورنال:
دوره 9 شماره
صفحات -
تاریخ انتشار 2011